Striving to improve the lives of individuals and families affected by urea cycle disorders.
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by rare diseases
Find a Study
Join the RDCRN for Rare Disease Day at NIH on February 27, 2026
Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Friday, February 27, 2026, from 9 am to 5 pm EST.
NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups
The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).
$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network
Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.
Learn More About Urea Cycle Disorders
Access educational materials, frequently asked questions, lectures, and more.
Learn MoreUCDC Updates
Newsletter of the Urea Cycle Disorders Consortium
Read Research Updates from UCDC Leadership
Learn More