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Striving to improve the lives of individuals and families affected by urea cycle disorders.

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Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by rare diseases

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UCDC is currently recruiting for our Longitudinal Study of Urea Cycle Disorders.

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NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

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$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network

Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.

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Pre-Doc Preparatory Program (P³) in Translational Research

Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and translational research?

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Learn More About Urea Cycle Disorders

Access educational materials, frequently asked questions, lectures, and more.

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UCDC Updates

Newsletter of the Urea Cycle Disorders Consortium

Read Research Updates from UCDC Leadership

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