Striving to improve the lives of individuals and families affected by urea cycle disorders.
![Two parents hold their child and smile at one another](/sites/default/files/styles/large/public/2022-07/UCDC_Images_Homepage_Research-Studies_shutterstock_691957750.jpg?itok=qnF4ERsG)
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by rare diseases
Find a StudyRecruiting Now
UCDC is currently recruiting for our Longitudinal Study of Urea Cycle Disorders.
Rare Research Report: June 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
Rare Research Report: April 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
![Flyer advertising the survey appearing on a laptop screen.](https://www.rarediseasesnetwork.org/sites/default/files/2024-02/RDPatientSurvey_image.jpg)
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Learn More About Urea Cycle Disorders
Access educational materials, frequently asked questions, lectures, and more.
Learn More![Newsletter Image](/sites/default/files/2024-02/ucdc-newsletter-fall-2023-cover.jpg)