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Rare Research Report: October 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

Rare Research Report: June 2024

June 26 2024

Rare Research Report: April 2024

April 24 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead

January 29 2024

Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

Watch: Susan Berry, MD, Describes Longitudinal Study of Urea Cycle Disorders

January 18 2024

Screenshot of Susan Berry, MD, presenting on the "Longitudinal Study of Urea Cycle Disorders."

Rare Research Report: November 2023

November 14 2023

Urea Cycle Disorders Over Time: What We’re Learning from a Natural History Study

October 30 2023