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A Previously-Funded NIH Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: May 2026

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for May 2026.

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Pregnancy in Women with OTC Deficiency: What the Research Shows

January 9 2026

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NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

October 29 2025

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Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

6th International Symposium on Urea Cycle Disorders, September 1-2, 2025

April 11 2025

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Understanding Seizures and Epilepsy in Urea Cycle Disorders

January 17 2025

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Medical history of participants diagnosed with epilepsy.

Liver Transplantation and Health Outcomes in Urea Cycle Disorders

January 17 2025

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Comparison of motor abnormality.

Health Risks for Females with Ornithine Transcarbamylase Deficiency (OTCD)

January 17 2025

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Average ages of asymptomatic OTCD females.

Impact of L-Citrulline/Arginine Supplementation After Liver Transplantation in Urea Cycle Disorders

January 17 2025

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Comparison of motor abnormality.

Quality of Life Challenges in Urea Cycle Disorders

January 17 2025

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UCD study standardized scores.
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The Urea Cycle Disorders Consortium (UCDC) is a previously funded research group of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818. The content of this website is solely the responsibility of the UCDC, whose administrative coordinating center is located at Children’s National Research and Innovation (Children’s Research Institute), and does not necessarily represent the official views of the NIH.