Latest News

Seizures and Ammonia Levels in UCD: What This Study Reveals

In UCD, seizures are common—especially during ammonia spikes. Higher levels raise risk. Ask your team about EEG monitoring and fast treatment.

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Two OTC Gene Variants Linked to Late-Onset UCD Symptoms

January 9 2026

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Does Early Dialysis Help Babies with UCD? New Study Explores the Impact

January 9 2026

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Liver Scarring Found in UCD patients, Especially ASLD

January 9 2026

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Comparing Two Ways to Track Diet in People with UCD

January 9 2026

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Pregnancy in Women with OTC Deficiency: What the Research Shows

January 9 2026

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Join the RDCRN for Rare Disease Day at NIH on February 27, 2026

December 19 2025

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Rare Disease Day at NIH. February 27, 2026. #RDDNIH. ncats.nih.gov/rdd

NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

October 29 2025

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Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network

August 12 2025

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Group photo of approximately 50 DMCC members seated and standing in rows.