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A Previously-Funded NIH Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: May 2026

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for May 2026.

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Rare Research Report: April 2026

April 27 2026

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Rare Research Report: February 2026

February 23 2026

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Join the RDCRN for Rare Disease Day at NIH on February 27, 2026

February 16 2026

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Rare Disease Day at NIH. February 27, 2026. #RDDNIH. ncats.nih.gov/rdd

Seizures and Ammonia Levels in UCD: What This Study Reveals

January 9 2026

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Two OTC Gene Variants Linked to Late-Onset UCD Symptoms

January 9 2026

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Does Early Dialysis Help Babies with UCD? New Study Explores the Impact

January 9 2026

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Liver Scarring Found in UCD patients, Especially ASLD

January 9 2026

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Comparing Two Ways to Track Diet in People with UCD

January 9 2026

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The Urea Cycle Disorders Consortium (UCDC) is a previously funded research group of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818. The content of this website is solely the responsibility of the UCDC, whose administrative coordinating center is located at Children’s National Research and Innovation (Children’s Research Institute), and does not necessarily represent the official views of the NIH.